Staying Frosty
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Worst Walking Partner … Ever!
Having been using an electric wheelchair since 6th grade, I sometimes forget about the fatigue factor of walking places. One such incident occurred while perusing the Mall of America with some friends. I would zip around, store to store, non-stop for all 4 floors of the mall. After about an hour of walking my ,…
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Out Gaming the Gamers
I’ve always enjoyed playing video games. My favorite genre are RPGS, and quite notably the Breath of Fire series, Chrono Trigger, and Final Fantasy. When my brothers and I were young, our aunt would look after us. With my brother Jake and I both having SMA our aunt would look after and help us before school,…
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Wheelchair Woes
It’s been about 1 month since the rain incident put the Cadillac in the shop. With much back and forth between the vendor and Medicaid, there has not yet been any progress, even though my insurance approved the authorization weeks ago. Fortunately, the tank is riding as good as ever (in spite of it’s old age…
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No Pushover
My friend Rhena recently made the local news in Milwaukee when a bus driver refused to give her a ride due to the extra time it would take to tie down her chair. Rhena reported this to Milwaukee Metro who are “re-training” this driver for violating metro policy regarding accessibility and accommodation. Way to go…
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Marriage – Accessible for All?
It’s great to see that the topic of allowing individuals with disabilities to remain in programs like SSI and MA has reached the White House. Unfortunately, for many with disabilities, they depend upon expensive daily care that is solely funded by Medicaid. However, these programs have income and financial limits that greatly restrict eligibility. When…
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When It Rains It Pours
The title from this post comes from my Aunt. So, I had been waiting for several months to get the motors repaired on my chair (the Cadillac). The gears had been grinding, and locking up when I would try to turn or back up. After numerous calls to my insurance provider, and yet another trip…
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In A Blaze of Glory
I’ve had four power wheelchairs over the course of my years of using power wheelchairs: The original (95-98 – donated to another kid), The Tank (98-ongoing – now my backup), The Sportscar (2007-2012 RIP), and the Cadillac (2013-ongoing). I started using my first power wheelchair in 1995. I was in 5th grade and my parents and…
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Summer Blues
It’s been a busy couple of weeks. My grandfather, Garth Frost, recently passed away at the age of 90. He was a kind man, with a calm, cool demeanor and a great sense of humor. It was great to have the support of friends and family during the funeral. In fact, I heard a great…
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Toys for a Cause
A friend shared this inspiring story with me today, Teacher donates toys for a cause, of a 50 year old Oregon teacher, Nat Ellis, who donated his collection of toys to help provide a 4 year old boy with type 2 SMA, Logan, secure a new outdoor wheelchair. It’s great to hear inspiring stories such as this…
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Winds of Change
Summer is at our door step, yet it’s still relatively chilly each morning here in Wisconsin. Yesterday morning it was 46 degrees as I drove my wheelchair up to the Capital square on my way to work. It’s been a busy, hectic, couple of weeks, with a project deadline looming at work, my Case Manager…
Got any book recommendations?