Staying Frosty
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Getting To Bed At A Reasonable Hour
Most worry about getting to bed too late, or waking up exhausted the next morning. However, when you rely on home healthcare to help you in and out of bed you may find yourself at the whim of tight schedules and a generally short-handed staff. In my case, not only can these tight schedules ruin…
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One Mary Poppins Bag Please
Travelling always entails packing one or more suitcases full: a change of clothes for each day, toiletries, cellphone charger, etc… . Travelling with a disability, however, the required gear becomes almost preposterous: one hospital urinal, one wheelchair charger, the wheelchair itself. Not to mention needing a patient lift and a shower chair for when not…
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Mile High Bathroom Break
More and more news has been coming out about the FAA and airlines investigating the viability of transporting passengers with wheelchairs onboard the plane without requiring them to transfer from their chair. One such article (CityLab.com), notes that Airbus is experimenting with making larger bathrooms available during the flight via a movable wall. Having traveled…
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Go To Jail … Go Directly To Jail…
I work at a public building. This particular building hosts the County jail on the two topmost floors. Now it’s happened several times that while getting into the elevator, before I can hit the button of the floor I want to go to, which takes me a while to move my arms in order to…
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Stair Lift … OF DOOM
While travelling to Berlin in August of 2013, my brother Ethan and I hit a number of museums. There was, however, one in particular that stands out in my mind, not for its amazing sculptures and artwork. Nor for it’s ornate architecture. But for it’s amazing stair lift. This unassuming, slightly different shade of steps…
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Happy 2016
A Happy New Year, and good tidings for 2016. The new year brings some fun plans and possibilities. My sister, who is 14 years younger than me, is graduating High School. My brother, who also has SMA, and his wife are expecting in August. And my youngest brother and his wife are looking to buy…
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Cat-Astrophe
The other day, while coming home from work, I arrived at my apartment, opened the door, and just as I went to close the door my cat, Minerva, made a mad dash for the door. Darting into the narrow gap between the door and the doorframe, Minerva hoped to sprint out Indiana Jones style. However,…
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There’s a button for that
I find it humorous the number of times that people around Madison have made the statement “I’m surprised they don’t have a door assist” when helping me open a door to a restaurant or shop. Of the 5 cafes I frequent around the Capital square, not a one has a door assist. Not even the Starbucks, in…
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I Want to Work
Having a disability does not stop me from wanting to work. However, I require caregivers to come in and aid me with most every task of getting ready in the morning. These cares are costly, with private pay costs of around $25/hr (as quoted by one agency). Since I personally require 4 to 5 hours of visits daily,…
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Happy Thanksgiving
I hope everyone had a great Thanksgiving, and got their fill of food, pie, family, and fun. I’ve made a tradition, these past three years of taking my parents, my sister (who is now 17), and her boyfriend to see the latest Hunger Games movie during the Thanksgiving weekend. The venture out to the theater,…
Got any book recommendations?