Category: Discussions
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A Return To Normal – But Let’s keep the Virtual Options
A fascinating read an article As a Disabled Person, I’m Afraid for the World to Go Back to ‘Normal’ by Karin Hitselberger. Karin wonderfully notes how in addressing the challenges of the pandemic, virtual opportunities were opened up that made things more available for everyone. These interesting opportunities opened up virtual museum tours, virtual appointments, virtual…
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Living with a Fear
I’ve been living with a fear. My fear, a fear many face, is one of losing something. A fear of losing my cares if my income creeps one cent over the limit. A fear of losing more caregivers due to lousy hours, lousy pay, and no benefits. A fear of losing my home when…
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Celebrating Diversity
In this difficult time where the nation is being reminded of the violence and discrimination that the Black community faces on a daily basis, I want to take the time to celebrate diversity. As someone who needs daily cares, I have caregivers four to six times a day. As such, this need has to be…
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A Time To Care
Growing up I used to assume that any time I was sick my parents would take me to the doctor. That any time I need leg braces, a new chair, or any other equipment, that it would be covered, as I needed these things to function in daily life. Over the years I’ve come to…
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Financial Woes
In September of 2009 I had run out of hours in my Limited Term Employment job. Finding myself unemployed I was left with my only subsidization being a choice of either a monthly check from Social Security or Unemployment Insurance. Social Security would pay around $800 a month, while Unemployment would pay roughly $1200. However,…
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Sleeping In? … Not so much
Nothing is nicer than sleeping in on the weekends. A rainy morning resting in your bed to the gentle sound of rain drops. A rainy morning, such as the one this morning, felt like a perfect morning to stay in bed. However, like everyone else, I had to be to work. 7:30 came far to…
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The Price of Time
A friend of mine shared an interesting Huffington Post article on Facebook last week: The Precious Commodity of Time: Taking a Second Look at the Effects of Paralysis. This article outlines some of the considerations and tolls of time that individuals with disabilities face each day. For your consideration, here’s a look at my relative…
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I Want to Work
Having a disability does not stop me from wanting to work. However, I require caregivers to come in and aid me with most every task of getting ready in the morning. These cares are costly, with private pay costs of around $25/hr (as quoted by one agency). Since I personally require 4 to 5 hours of visits daily,…
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Travelling around Town
Growing up in a rural country-side setting the run to the nearest grocery store was often a 20 minute drive to the next town over. When my brother Jake and I were still quite young we could just be lifted into standard cars and vehicles, but as we began to use wheelchairs more regularly, and…